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What is PKD?

Polycystic Kidney Disease

Polycystic Kidney Disease

PKD is an inherited genetic disease in which clusters of damaging cysts develop primarily within your kidneys, causing your kidneys to enlarge and lose function over time. PKD is progressive (primarily during one’s adult life) and affects more than 600,000 Americans and 12.4 million people worldwide. Although, many people are unaware they have PKD, so it’s estimated that somewhere between 600,000 and 1 million people in the US have the disease. 


Currently, there is no cure and only one effective treatment for PKD. The lack of more effective treatments or a cure leaves millions of people at risk of developing cysts on their liver and other organs in the body in addition to high blood pressure and in the most severe cases, kidney failure. Other PKD symptoms may include:


  • High blood pressure

  • Back or side pain

  • Blood in your urine

  • Increased size of your abdomen

      due to enlarged kidneys

  • Headaches

  • Kidney stones

  • Kidney failure

  • Loss of kidney function

  • Chronic pain

  • Growth of cysts in the liver

  • Development of an aneurysm in the brain

  • Pregnancy complications

  • Heart valve abnormalities

  • Colon problems


The PKD Foundation

The PKD Foundation is the only organization in the U.S. solely dedicated to finding treatments and a cure for PKD to improving the lives of those it affects. The organization funds education, advocacy, support, and awareness for PKD on a national and local level. Additionally, the PKD Foundation funds basic and clinical research, nephrology fellowships, and scientific meetings to discover and deliver treatments and a cure for PKD.

What the Ride Supports

The PKD Foundation’s vision is to #endPKD through conducting and funding research. Since 1982, the PKD Foundation has invested more than $50 million in PKD research and leveraged $1.5 billion in government funding to improve disease understanding to drive new treatments. 


The donations received by RideForPKD will directly fund the PKD Foundation's scientific research to find more treatments and hopefully a cure for PKD.

The bike ride to find a cure for PKD.

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